Up to 1.5 million disabled people could be missing out on social care support

A poll of 1,504 working-age disabled adults found that 28% have never accessed social care or other support despite potentially being eligible. Healthwatch England are calling for a fully funded, long-term plan to reform social care.

Up to 1.5 million working-age disabled people in England could need social care support but are not accessing it. This means they are likely to be missing out on help with daily activities such as washing, cleaning, socialising, and going to the shops.  

About the Healthwatch England poll 

Ten years since the Care Act 2014 came into force, the new poll reveals that out of 1,504 working-age disabled adults in England, more than one in four, 28%, could be eligible for support under Care Act criteria but have never had a social care needs assessment. 

Why people don't receive social care  

The people who took part in the poll had unmet social care needs— they said they’re eligible for social care under the Care Act but had never received social care due to multiple factors:  

  • They didn’t think they could get any support (65%);
  • They didn’t know where to go for support (34%);  
  • They were unable to afford to pay for care or contributions (26%);  
  • They found it too difficult to get support from councils or the NHS (14%); 
  • Their local service closed (2%).  

People who were excluded from the estimate include:  those who are waiting for a social care assessment, have been told they are ineligible for social care support, are supported by unpaid carers, access state benefits, or simply do not want any support. 

Also excluded were those who currently access care, which according to NHS figures is around 300,000 working-age disabled adults receiving publicly funded care and an unknown number of people funding their own care. 

When people receive social care, they report positive experiences

Out of 20% of respondents who said they currently receive social care, over three quarters, 78%, agreed that the care they receive helps them live the life they want, compared to only nine per cent who disagreed with the statement. 

Two-thirds (62%) of the respondents who receive social care said it helps them stay healthy, while over half, 51%, said it helps them do the activities they enjoy. 

Just under half, 47%, said that their care enables them to keep themselves and their home clean, and the same number said it supports them to eat and drink properly. Just over one in five, 22%, of people said that their care supports them in working, studying, or volunteering.   

Healthwatch England (HWE) are calling for reform 

HWE are calling for a fully funded and long-term reform plan for social care that will address workforce issues, offer more support for unpaid carers, and a focus on early prevention. 

As part of the reform plan, they have set out three recommendations:   

  • The Government should fund local authorities to raise public awareness of social care and find potentially eligible individuals through proactive outreach to disabled people.
  • Government should also dedicate funding to boost capacity and support councils in addressing existing care assessments and care package backlogs. 
  • There needs to be greater investment to ensure all disabled people accessing social care assessments are offered a Care Act advocate who can help them understand the assessment process and their rights. 

Read the HWE report in full

About the poll 

Savanta interviewed 1,504 working-age adults, 18-64, living in England between February 22 and March 7, 2024. The data was weighted to be nationally representative of working-age disabled adults in the UK by age, gender, and region based on ONS Estimates of the economic activity of those aged 18-64 with a disability. Based on the most recent estimates, there are approximately 5.4 million working-age adults with a disability in England.